advance directive end of life planning
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Emergency medical services (EMS) personnel often are not permitted to honor requests to withhold resuscitation at the end of life, particularly if there is no written do-not-resuscitate (DNR) order.
Professor Thaddeus Mason Pope on end-of-life law and policy. A blog about medical futility, bioethics, end-of-life medicine, right to die, medical law, health law, patient rights, critical care and ICU ethics
medicalfutility.blogspot.com/2018/

At a Death Cafe, people, often strangers, gather to eat cake, drink coffee and discuss death. Their objective is "to increase awareness of death with a view to helping people make the most of their (finite) lives." A Death Cafe is a group directed discussion of death with no agenda, objectives or themes. It's a discussion group rather than a grief support group or counseling session.

Audio

Thinking about death is frightening, but planning ahead is practical and leaves more room for peace of mind in our final days. Judy MacDonald Johnston shares five practices for planning a good end of life.

Books

Other

Doctors die, just like the rest of us. What's surprising is not how much medical care they demand, but how little.
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TED Talks

Let's Talk About Dying, by Peter Saul
Medical Futility Blog
“Am I Dying?”  The honest answer,  by Matthew O'Reilly

O’Reilly describes what happens next when a gravely hurt patient asks him: “Am I going to die?”

Prepare for the End of Life, by Judy MacDonald Johnston
We turn to doctors to save our lives. But when it comes to the critical question of what to do when death is at hand, there seems to be a gap between what we want doctors to do for us, and what doctors want done for themselves.
In La Crosse Wisconsin, almost everyone plans for their death. Not coincidentally, La Crosse spends less for end-of life care than any other place in the country.
Life That Doesn't End with Death, by Kelli Swazey
Death Cafes
In Tana Toraja, weddings and births aren't the social gatherings that knit society together. In this part of Indonesia, big, raucous funerals form the center of social life.
What makes life worth living in the face of death, by Lucy Kalanithi

In this deeply moving talk, Lucy Kalanithi reflects on life and purpose, sharing the story of her late husband, Paul, a young neurosurgeon who turned to writing after his terminal cancer diagnosis.

These guidelines apply to both adult and pediatric patients. There are several types of advance medical directives (documents in which a patient identifies the treatment to be withheld in the event the patient is unable to communicate or participate in medical treatment decisions).

Video

Articles

Peter Saul asks us to think about the end of our lives - and to question against the modern model of slow, intubated death in a hospital.
Frontline explores the intersection of life, death, medicine and what matters in the end.

Once one gets past the initial inclination to avoid the topic, the end of life is a subject of fascinating and important stories, ideas and explorations.  We've collected a few videos, audios and articles that we find particularly interesting.  If you're aware of a story you'd like to share, let us know.

Websites

 The 4 stories we tell ourselves about death, by Stephen Cave

Philosopher Stephen Cave begins with a dark but compelling question: When did you first realize you were going to die?

What is Death Like

The federal government has spent billions helping doctors and hospitals digitize patients lives, but there are still many holes in our electronic records including a big one: We can't list end-of-life wishes.
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